THE NEUROLOGICAL ALLIANCE PATIENT EXPERIENCE SURVEY
This questionnaire is about your care and treatment for your neurological condition.
The purpose of the survey is to provide information which can help the Neurological Alliance
monitor and improve the future quality of health services and social care for people with neurological
Taking part in this survey is voluntary. Published reports will not contain any personal details.
Who should complete the questionnaire?
The questions should be answered by you, as the person with a neurological condition. If you need help to complete the questionnaire, the answers should be given from your point of view – not the point
of view of the person helping.
Completing the questionnaire
For each question please tick the box that is closest to your views. Don’t worry if you make a mistake; simply tick the correct box. For some questions you may be instructed that you may tick more than one box. Sometimes you will find the box you have ticked hides other questions, this ensures you will miss out questions that do not apply to you.
Please do not type your name or address anywhere on the questionnaire.
To make sure the information we collect is useful, we need some personal details from you and may need to access
information held about you in other databases. This is to form an overall picture about the care and treatment
people receive in different areas, and to understand what may be causing any differences. Your responses are completely confidential and anonymous. You are given the option at the end of the questionnaire to consent to being contacted further.
By completing this questionnaire, you are agreeing for the information provided to be used for this
purpose. In particular, you are agreeing that:
Your personal details and relevant health information can be held and used by an organisation contracted
to the Neurological Alliance to analyse the data. In this instance, Quality Health – an expert health and social
care research agency will be carrying out the survey on behalf of the Neurological Alliance.
Your personal information will be kept secure using the highest available levels of data security - and will be anonymised after analysis and before any publication.
Your personal information will not be released by anyone working on behalf of the Neurological Alliance
unless required by law or where there is a clear overriding public interest.
You can ask for information you give the Neurological Alliance in this questionnaire to be removed, up to the point at which the data is analysed and personal details are removed.
An aggregated data set combining all responses will be passed between Quality Health and Neurological Alliance.
If you have any queries about the questionnaire, please call the FREEPHONE helpline number on
0800 783 1775 or by email at firstname.lastname@example.org