Patient Survey on awareness of cancer-associated
thrombosis in people with cancer
Introduction
People with cancer have a higher than normal risk of developing thrombosis (a blood clot). This condition is known as cancer-associated thrombosis (CAT). Yet it remains under-reported, seldom discussed and often misdiagnosed. This survey is about trying to understand how much cancer patients know about thrombosis, and when and where they find this information.
The survey is being conducted in 6 countries, including the UK where it is being piloted. The results will be used to inform policymakers and other stakeholders, in order to improve their understanding of cancer patients’ awareness of thrombosis, so that its risks and symptoms can be dealt with better.
Blood clots in the arm or leg are known as Deep Vein Thrombosis (DVT). Blood clots in the lung are known as a Pulmonary Embolism (PE). If you have any concerns about your risks of cancer-associated thrombosis, or if you think you might be suffering from any of its symptoms, you should speak to your doctor.
Informed consent and use of data
By completing this questionnaire, you are giving your consent for the information you provide to be used for the above purpose. The information is being collected for ECPC by Quality Health, an experienced survey provider. Quality Health will be subject to strict obligations regarding the security and confidentiality of your information, and will not be allowed to use your details for any other purpose. Your personal information will not be released unless required by law or where there is a clear overriding public interest.
No personal information, or individual responses, will be passed on to any ECPC members or funding companies – only aggregated survey data on overall results.
Quality Health is registered under the UK Data Protection Act 1998, and this survey is being undertaken in line with all relevant requirements of the UK Information Commissioner and forthcoming General Data Protection Regulation (GDPR).
Thank you for taking part in this survey. Your insights will help improve cancer care for other patients and their families today and in the future.
The questionnaire should take no more than 15 minutes to complete.
ECPC, the European Cancer Patient Coalition (www.ecpc.org) is the voice of cancer patients in Europe. With over 400 members, ECPC is Europe’s largest umbrella cancer patients’ association, covering all 28 EU member states and many other European and non-European countries. ECPC represents patients affected by all types of cancers, from the rarest to the most common.
Quality Health (www.quality-health.co.uk) is a specialist health and social care survey organisation, working with public, private and voluntary sector organisations to understand and improve patients’ experience of their care and treatment.
Filling in the questionnaire
If you have any queries about filling in the questionnaire, please call the FREEPHONE helpline number on 0800 783 1775; or email info@quality-health.co.uk.