Sarcoma UK Adult (16+) Patient Survey
The survey should take around 20 minutes to answer. Please work through the survey by reading each question and selecting the most appropriate answer. Any question you don't wish to answer can be left blank.
The survey will close on Monday 31st March 2025.
We recognise that confidentiality is extremely important, so IQVIA are carrying out the research on our behalf. IQVIA are members of the Market Research Society and operate in accordance with their Code of Conduct. Your link to the survey is completely anonymous and once completed your responses are confidential and will go directly to IQVIA. They will not be seen by anyone at Sarcoma UK.
Sarcoma UK will NOT receive your name unless you consent at the end of the questionnaire to further contact.
You can find out more about IQVIA’s approach to privacy and confidentiality in their privacy notice: https://www.iqvia.com/about-us/privacy
What will we do with this information?We will be publishing a report on the findings from the survey later this year. The findings will help us understand which areas of sarcoma care are working well, and where it needs to be improved. With this information, we can work towards giving people affected by sarcoma better support in the areas they need it most. In addition, this data will give us strong evidence that we can use to campaign for change in government policy and NHS sarcoma care.
We understand that sharing personal experiences related to sarcoma can be sensitive and potentially upsetting. If you need support, or have any questions about sarcoma or sarcoma care, please consider reaching out to the Sarcoma UK support line through:
You can also find emotional support at: