Sarcoma UK Survey 2025

Welcome to the Sarcoma UK 2025 National Sarcoma Survey. This survey will collect information about the experience of people affected by sarcoma across the UK, including adults, children and carers.

We are asking questions on subjects like symptoms, diagnosis, treatment, and the effect sarcoma has had on your wider life. It also asks about background, including age, gender and ethnicity. This is so we can find out more about different people's experiences of the NHS and receiving sarcoma care, across different parts of the UK. If you don’t want to give us this background information, you don’t have to.

So that we can compare how people’s experiences of sarcoma care have changed over the past ten years, our survey is very similar to the National Sarcoma Surveys we ran in 2015 and 2020. We were supported in running these surveys by IQVIA (formerly Quality Health), an independent research company, who are also helping us run our 2025 National Sarcoma Survey.

How do I fill in the survey?

There are three possible surveys available to fill in. This is so we can capture the experiences of sarcoma care from different perspectives, including from people who are answering on behalf of a sarcoma patient. We welcome responses both from people currently experiencing sarcoma and those who have experienced it in the past. Please choose the survey that you think is most relevant for you.

Please ensure you only complete and submit one survey.